Our new cookbook is out and Dede would like to give away a free copy to the first two people who comment on this post — tell us a bit about yourself, are you a caregiver, do you have Crohn’s, or colitis, or IBS, or some other autoimmune disease? When you receive your book (send email in PM to email@example.com), please post a review on Amazon for us and we will be eternally grateful!
We are excited to share these gut-friendly recipes from the book and there is a long introduction about how to live with IBD and tips to help.
For the millions of people afflicted with irritable bowel disease (IBD), including Crohn’s and colitis, it can be a daily struggle to find nutritious meals that won’t aggravate symptoms or cause a flare-up. The Living with Crohn’s & Colitis Cookbook is your essential nutrition guide with over 100 recipes and meal plans expertly designed to improve daily functioning and help relieve symptoms of Crohn’s and colitis.
The Living with Crohn’s & Colitis Cookbook contains everything you need to plan your meals, balance your diet, and manage your symptoms, including:
• A guide to keeping a food journal
• Sample meal plans
• Tips for shopping for an IBD diet
• Gentle and nutritious recipes to help soothe flare-ups
…and much more!
The Living with Crohn’s & Colitis Cookbook features over 100 recipes, including Zucchini Buckwheat Banana Bread, Homemade Almond Milk, Dr. Lang’s Healing Soup, Garlic-Herbed Scallops, Coconut Curry Chicken over Brown Rice, Mushroom Risotto with Cashews and Parmesan, Crabapple Walnut Cake, and many more. The book also features Paleo recipes.
Enjoy these photos from our book!
Dear Fellow UC-ers and Crohnnie’s, Happy New Year!
One of the best resolutions for the new year that is underway, is to have a positive outlook!
I know, I know, sometimes it is really HARD to have that when you feel lousy, but our community that has grown around the book, and the online network of Crohn’s, colitis, IBS/IBD, and other autoimmune disease is a supportive one. With that in mind, I propose a three-month guide to wellness. It isn’t a medical guide, and you should always consult your GI about doing anything dietary or herbal, or even lifestyle changes.
As usual, start with moderation, and keep a daily journal — not just about the food you eat, but what you do, how much you exercise and for how long, when you have acupuncture or massage, or have your period, or if you are exposed to anything potentially toxic in your environment—keep track of it all! Dede swears by this, and Jessie says she has patients that immediately start making connections (like, for example, maybe that whole bag of chips you ate the other day wasn’t such a good idea….). That said, here is the First Two Week GOAL. Take it slow, and modify as necessary.
1. See the change and believe in the change! Visualize optimal colon health daily. See yourself happy, active, and vibrant in your mind.
2. Proper Mealtime Habits—eat slowly, and take your time preparing, shopping, and don’t overeat, or try new foods during the plan.
3. Remove major dietary causes of inflammation—keep a food journal, and stay away from trigger foods! (For Dede it is wheat, sugar, and dairy—I know, hard to imagine life without dairy? Then switch to almond milk which is so good!)
4. Add only one supplement or herbal medicine, whichever best suits you. This may be an acute remedy for diarrhea, acidophilus, or any other supportive medicine—for example, Dede started a new supplement, turmeric, which is a natural anti-inflammatory. She takes two capsules daily, and tries to cook a curry dish once a week or so.
5. Herbal teas: pick one of the teas that best fit your needs and drink daily. Dede drinks Peppermint! Also Chamomile is a good stress reducer. Add honey for sweetening, as you like.
6. Take it slow and easy. Be kind to yourself, and ask for help!
Happy New Year!
From Dede and Jessica, and the LWCC group—we are here for you!
Email with questions to firstname.lastname@example.org
Or to Jessica Black, ND at
Sam, Sherri, Dede, and Saskia at the end of the CCFA’s Nape to Sonoma Half Marathon last summer—we were all tired but elated to have finished, and raised almost 2 million dollars for IBD research for the CCFA.org.
Follow Saskia’s blog—she is an inspiration to us all!
Greetings fellow Crohnnies and UC-ers, and summer travelers,
I love to travel, and left home when I was eighteen even to live in Europe by myself for a year. I settled in Vienna, Austria, and loved the culture and the people. The diet, however, was not the healthiest, and I gained twenty-five pounds by subsisting on Würst, and bread, and of course beer. I remember, when I came back from Europe, my father looked at me and said, “you’ve gained twice the Freshman 15, and you didn’t even go to college!” ha, ha ha.
Well, here I am, many years later—with college, marriage, and three wonderful children behind me, and I have to say that the one good thing that having Crohn’s disease has done is I don’t give a shit about my weight, and I just eat what I can and make no apologies to anyone! (Sorry to use a swear word, and be so blunt!). My weight has stayed at around 140, which my gastroenterologist says is “perfect,” because I eat healthy food all the time—hardly any sugar, no fried food, no fatty food, no wheat, very low-fat dairy, exercise daily, and maintain a low-stress lifestyle.
The reason I am writing this post today, is not to talk about our American culture’s OBSESSION with food and being thin as a sign of success; no, it is to talk abut the opposite—love your body and cherish your family and take responsibility for your own health and education.
I say this because for years, seriously, I wallowed in self-pitying behavior during my Crohn’s flares, which pretty much happened monthly, and had the nasty habit of joining with me having my period (good timing, eh?). I used to crawl into bed, and sometimes cry quietly, so as not to disturb my kids. After driving them to school (during one of these flares), I would frequently pull over to the side of the road in my car, and just put my head on the steering wheel and sob. It took me years to ask for help, and by the time I was finally diagnosed, my disease had basically devoured my terminal ileum, for it was beyond repair due to repeated flares leading to scarring.
So, having first had symptoms of ulcerative colitis (I have this, too!) after I returned from Vienna (remember my unhealthy lifestyle, horrible diet, and self-loathing attitude?), fast forward to 2006, to when I was admitted to the ER with a stomach the size of a basketball, and a severely impacted bowel that was about to rupture…I finally admitted that I was one sick person and I needed help.
That was my first step toward getting well.
Inside my head, I was constantly thinking about what I could or could not eat to stay thin, and be attractive—I smoked cigarettes to curb my appetite and utilized the diuretic aid that nicotine provides; I also worked all the time and exercised in fits and starts, and tried to diet, off and on, but always gained the weight back.
Having my kids and childbirth helped me let go of inhibitions (having my third baby stark naked in the OR and not caring one bit about my big belly or flabby legs 😉 was a great release for me—I always wanted to be trim and fit and “in control.”
One thing having Crohn’s has taught me is that sometimes when you lie on the cold and smelly bathroom floor with your arms wrapped around the toilet crying for your (not very nurturing) mother, you are clearly not in control!
Here is a link to a recent article about yoga and body image, and I was interviewed by the wonderful writer, Linda Sparrowe!
A disordered body image isn’t always about weight, of course. Dede C., a graphic designer from Vermont, remembers the time she was in a yoga class practicing handstand and her shirt came up, revealing a huge scar on her belly that she hated and felt ashamed of—a result of multiple surgeries. Her yoga teacher told her she was beautiful. “But my scar,” she said. “Your scar is beautiful, too,” he said. “It’s a part of who you are.”
So for my fellow Crohn’s disease and ulcerative colitis readers, and people who love you who may also be reading: let go, and by that I mean ask for help, but also study everything you can about your disease and admit you have a serious disease that can even lead to death. Don’t be polite at potluck dinner parties; at restaurants, ask for rice, well-steamed fresh local veggies (especially available in summer), and baked fish especially made for you if the menu doesn’t have easy-to-digest food (I just did this in Rhode Island on vacation last week, and I also politely sent back a dinner because something didn’t taste right and I trusted my gut—the fish was a bad piece, it turned out! And no way am I going to get food poisoning again…).
As I write this blog, I pledge not to offer “tips for this or that, digestive disease.” Instead, I offer up my interpretation of current medical research (remember, I follow gastroenterology papers, studies, and the like, with the zeal of a pre-medical student!), and personal stories that will, hopefully, help people cope and learn about their disease, and thrive!
I’ll post a few vacation photos (that’s me with my daughter and I wore a “tankiny” bathing suit that occasionally showed my scar and I did not even think about it!). I would love to hear how people are doing—travel with IBD is a challenge, so if you can’t take off this year, have a “home vacation,” with a week off from work and time away from computers! Get a hammock, read a great novel (Shadow of the Wind is my current favorite and it is set in post WWII Barcelona!), and watch movies….. Release stress daily, which is key to long-term health.
According to a recent New Yorker article on the science of altruistic behavior, “genes for altruism could evolve if the benefit of an action exceeded the cost,” and this thesis has got me thinking about the etiology of disease, and the feeling of hopelessness one feels when you are dealing with an autoimmune disease in particular, not to mention the broader, sweeping, fear of the sustainability of our planet.
I remember being alone in the hospital, prior to my bowel resection in 2006, and they were trying to keep things calm with my intestines (the risk of bowel perforation was at a critical stage) by giving me large quantities of steroids. A nurse forgot my morning dose, and I swear I could feel my small intestine go from a dormant, dead tissue (my disease was characterized by fibrostenotic scarring) state, to a red hot inflammation. The nurse assured me I had been given my dose of prednisone, and he told me to rest. As I was “resting,” and crying quietly in my bed, a young doctor/fellow, Dr. Bonsui, came by to see me, and wondered why I was so sad.
I credit this DO for squeezing my hand, as he told me, “You must think positive, Dede,” to partly saving my life (my own will to live being the other piece of my personal struggle with overcoming a potentially life-threatening disease). I will never forget his sweet, mellifluous, voice; his bedside demeanor was so kind and gentle. I lay there after he left, and nodded politely when the same nurse came back in, and apologized for skipping my dosage.
These kinds of hospital occurrences are legion; us IBD-ers are used to being patients, but it is important to stand up for your rights and call the professionals for help (or clarification) if you see something amiss.
My visiting medical fellow, Dr. Bonsui, showed me true compassion. I often think of him when I am scared (a few days of diarrhea will do that to me easily), and I remember how he told me to ‘think positive,’ thereby instilling in me the seeds of confidence, and patient empowerment, to get well.
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Today, 5/5/12, people around the world are volunteering, documenting, educating and protesting to support communities on the front lines of climate change.
From the early morning sunrise in the Marshall Islands, far out in the Pacific, to the countries of Pakistan and South Africa, across deserts and plains, the impact of climate change due to the rise of carbon parts per million in the atmosphere is causing extremes in weather unprecedented in the last 100 years. There is no turning back, in my opinion, and that of other environmentally-minded people around the world. This link will show you some amazing photos and descriptions of how we can “connect the dots” globally, and all act together to save our planet. Looking at these photos, I don’t feel so alone!
You can see me in the lower right corner of the photo below, taken with environmental activists from my home state of Vermont, at the site of the Bartonsville Covered Bridge that was tragically swept away and destroyed by the torrential rains of Tropical Storm Irene last August 28, 2011.
Photo by Gregory Dennis, #350vt. Link to longer story from the Burlington Free Press, by Joe Solomon.