A Comprehensive Naturopathic Guide for Complete Digestive Wellness

Tag Archives: LDN

¡Hola! My fellow Crohnies, uc-ers, readers . . . My friend, Shelly, asked me what was up, so I thought I better get on here, and write something! Having Crohn’s disease AND colitis, and other autoimmune diseases is not a walk in the park, but my girlfriend, Cindy, has something called myasthenia gravis, and she is really struggling. Last night, I had a home jewelry party as a way for her to raise money to help defray some medical expenses, and the upcoming mortgage (she ‘s a single mother of three on disability). It felt great to help HER! I think helping others is the way to help ourselves….

So now, the update!

Crohn’s flare Novemeber 30th Rx.
Started low dose naltrexone, high potency turmeric, increased probiotics, and something called Glutamine (the last 2 on an empty stomach), along with high potency turmeric (cur-cumin—yes, an herb!). I told my GI I was doing this…. And now it is over two months later, and I feel great!!! This is definitely NOT a drug or infusion with potential side effects (though LDN is not FDA approved), rather it is a more “integrative” approach to medicine that should be practiced everywhere. I’m lucky, in that my co-author, Jessica Black, is a naturopath who is up to date on treatments that are less invasive, but effective! Worth looking into, don’t you think?!

After I started writing this post, I looked up Glutamine, and this is how it works:

With the anti-inflammatory, Cur-Cumin, and the beneficial effects of increased probiotics, the Glutamine works as a binder in my gut to help decrease the inflammatory cytokines. It is an amino acid. The probiotics are live culture micro-organisms that help to balance the gut micro flora. This is good stuff! The doctors, the researchers, and patients are beginning to take all of this gut bacteria science news pretty seriously.

Onward!

“The human gut teems with bacteria, many of their species still unknown. They help,us digest food and absorb nutrients, and they play a part in protecting our intestinal walls. Gut bacteria may also help regulate weight and ward off autoimmune disease.”

I strongly feel that taking a regimen of potentially carcinogenic drugs is not the way I, personally, want to go! I HAVE taken Prednisone, and currently I am on a low dose (3mg) naltrexone protocol (this is NOT FDA-approved), and I just know it is working.

A feeling of consistency is occurring—getting at least 8 house of sleep, walking-running 3/4 miles a day, doing yoga and meditation daily, seeing a therapist…. And writing about it all. This kind of integrative medicine is where we should all head towards, as patients and caregivers!

~

Here is the coolest photo in the world…. Can you guess what it is a photo of???

From National Geographic!

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Jessica Black, ND, my co-author, naturopathic doctor, mother of two, avid outdoors woman, and cookbook author of The Anti-Inflammation Diet & Recipe Book, was the reason my own story, and our book, Living With Crohn’s & Colitis, got published. By reading Jessie’s book that I purchased one day at my naturopath’s office, she inspired me to eat better, and thereby lower my body’s overall level of inflammation. . . . I contacted her about how great her book was, and we decided on the phone to write a book together. The rest, as they say, is….well a book that is helping tons of people because it is good science and a patient perspective. Fast forward to today. . . .

~

Update
After my colonoscopy results last week, I crawled into a little shell and barely communicated with friends, and family….I was also exhausted from the fasting and quite sore from all the probing and poking around in my small intestine! I called my insurance company, CBA-BC/BS VT, and found that the Mayo Clinic was “in network,” and they registered me as a patient. I can go there for a second opinion, probably in January when my sister can join me. Everyone was “so nice.” When I said those words on the voicemail of the surprisingly helpful insurance business rep, I burst into tears — ah, delayed grief!

Fast forward to yesterday
With a better attitude, more energy, and (by the way) no symptoms of Crohn’s (which are, when severe like my case: diarrhea, vomiting, cramping, skin ulcerations, joint pain, etc.), I followed up on my weekend consult with my co-author and nationally-recognized naturopath, Jessica Black (who, by the way, dropped everything on a Saturday to make a phone-house call for me!), with a visit to my local naturopath, the wonderful Cheryl Procter. Additionally, I made an appointment with my clinic gastroenterologist, Steven Bensen, to follow up on my colonoscopy results. I see him January 23rd, and I firmly believe in following both paths, down the middle if you will pardon my overuse of the metaphor, with allopathic medicine and naturopathic medicine, on either side.

My Naturopathic Treatment Plan
Here is what I am on now: Low Dose Naltrexone, High Potency Turmeric, Glutamine, probiotics, Vitamin D, Vitamin C with Echinacea, along with my multi-vitamin, adrenal support, and Omega 3. I am researching LDN like crazy, and found this study with positive results . . .

“Think Positive”
Since my diet is very low-inflammation (thanks to Jessica Black, ND!), I am really being careful now (after 6+ years of remission, I was definitely slacking!): No sugar, red meat, fried or fatty foods, etc.

Below, is a recipe for a delicious cornbread from my friend, Julie Robinson at the Brattelboro Food Cood (thanks doll!)… Note, I substituted 2 Tablespoons Honey for the sugar, and Rice Milk for the milk, and Tofutti Sour Cream for regular sour cream…. YUM!  Here is a great NYT link to gluten-free dishes, too! ~

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this was my breakfast …. 7 minute, Bailey’s farm-fresh eggs… Yummm

Seems like my own health has taken a bit of a dive ;( … when I was freaking out about Lyme disease, it turns out it was a Crohn’s flare-up. Yes, I have been so happy to be in clinical remission for the past 6-1/2 years, I’d forgotten what it was like to have a flare up!

I thought I had Lyme disease, and was having stiffness and flu-like symptoms. Some of my readers will remember that I had a systemic flare of poison ivy during the first half of the summer (yeah, five weeks on Prednisone was not fun;( … Well, my dermatologist thinks the acute contact dermatitis (poison ivy resin is powerful stuff, not easily washed off and stays on your work gloves I learned!) caused my body to get out of balance, and I think she may be right! There is a strong connection between the skin and the gut — more on that subject in a later blog post.

I was at Dartmouth Hitchcock this week for a colonoscopy, and my results were very discouraging. My small intestine is in an active flare, characterized as severe. The news could have been better that is for sure! I am still in shock. My small intestine is riddled with Crohn’s in a 20 centimeter area just near the former surgery. Crohn’s is incurable and when it does this, they get serious and make you take these auto-immune suppression drugs. The recommended drug, 6-MP, is an immunomodulator – the way it works is it suppresses your immune system so that your own immune cells will stop attacking the lining of your intestines. There are patients who tolerate the drugs and it helps them stay in remission and pain free. Others have reactions to the drug, like fevers and stiffness. What the doctors look for at the beginning is liver damage.

On Thursday, after my colonoscopy, they got me right to the lab to draw blood for the test to determine if I could tolerate the 6MP. I, of course, started talking to my wonderful GI, Steve Bensen, about not taking the drugs. Couldn’t I work with my naturopath, I reasoned, and take the less toxic drugs she prescribes, and come back in 3 months for a scope? I did just finish a heavy round of Doxy for the symptoms of Lyme disease (for the record, I had an engorged deer tick that I pulled off and squashed and flushed down the toilet — always save the tick to be tested!), so the antibiotic had upset my stomach.

The head of the IBD Clinic, Cory Seagel, even came into my little curtained room with me in my Johnny gown sitting on the side of the bed. “You should start the drug immediately if your liver can tolerate it, better yet, you should take a combination of 6MP and Remicade,” he said.

Here is a good definition from Livestrong:

6-Mercaptopurine, or 6-MP, is a purine analogue antimetabolite drug that is used in the treatment of acute lymphoblastic leukemia, Crohn’s disease and ulcerative colitis. Purine analogues impair DNA synthesis, leading to less cells being created. Acute lymphoblastic leukemia, Crohn’s disease and ulcerative colitis are all conditions of an overactive immune system. 6-MP helps to decrease the amount of immune cells in the body to help control the disease.

The findings
The colon appeared normal. My sigmoid resection at 15 cm and its short blind colonic pouch had normal anastomosis (a term for surgical connection)….This is good news! Large intestine: check.

Ileal resection: segmental inflammation characterized by erosions, erythema, fir ability, granularity, loss of vascularity, confluent deep ulcerations, and serpentine and shallow ulcerations found in neo-terminal ileum and extended from my first surgery for 20 cm (about 8 inches)…. Small intestine: NSG (not so good!)

The power of poetry/intention
There is something about the language of medicine that I find vaguely hypnotic and poetic. Weird as it sounds, understanding the human side of medicine is an intention of mine, and one that I hope to impart on my readers, should they desire to learn more!

The path ahead
I wish I didn’t have this new problem, and feel fine! I went 5-10 years last time, but this time the wall of the small intestine is compromised and thinning. I may be flying out to the Mayo Clinic, for a second opinion and work-up involving their more integrative approach. I am a wreck about this, of course, but trying to stay focused. As my daughter, Emma said, I have such resolve and a positive attitude… Don’t feel like dwelling on it too much, but wanted to let my (our) wonderful readers know why I’ve been out of touch. I am going to start with the naturopathic doctor on Tuesday….. and Mayo Clinic, probably in January.

Notes from Jessie Black, ND
Let’s work with an accompanying pharmacist and try low dose naltrexone — start very low and amp up to 4.5 milligrams. In addition, she mentioned a very powerful high-potency coated turmeric (this is hard to absorb, so it’s necessary to work with a naturopath who knows their herbal medicine), and a new, more fiscous fiber called PGX. Fiber is something I take daily, already, along with garlic, Aloe Vera, extra C, D vitamins, calcium and multi-vitamins and Omega 3 capsules. A good article about helpful herbs is found here

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Dede in the recording studio at VPR. I am happy when I am writing!

My basic diet now: No caffeine, dairy, processed foods, alcohol and trans fat. Instead SCD-certified food, lots of fresh-steamed veggies, cold water fish, and other foods from SCD! An awesome site for basic dietary help is found here! Link to a flare-up diet.

This blog will detail my journey. Thanks for your support and being part of it all! I welcome comments and suggestions, especially from IBD sufferers who have taken other meds besides 6MP and Remicade. Or IBD patients who have taken the drugs and had good results…I want to examine and research both options, along with a more integrative approach to possibly even healing the current severe inflammation without drugs!

I will start off by following my co-author and naturopath, Jessica Black’s Anti-Inflammation Plan (diet and lifestyle) that is in our very own book, Living With Crohns & Colitis!

Jessica K. Black, N.D., my co-author and also author of “The Anti-Inflammation Diet and Recipe Book” suggests that food is a healthier way to control inflammation and reduce chronic disease than taking medications. Drugs used to reduce inflammation are either steroids or nonsteroidal anti-inflammatory drugs, NSAIDS. Taking steroids can damage the immune system and both categories of drugs can have side effects. Black recommends eating anti-inflammatory foods that boost health while reducing chronic illness.
[She] tells us that an important step in implementing a personal anti-inflammatory diet is eliminating food allergens. When the dieter eats a food allergen, his/her body may stimulate the production of antibodies that can cause an inflammatory response. Black recommends eliminating all potential allergy triggers, including

  • caffeinated beverages
  • fried foods
  • processed foods
  • peanut butter
  • carbonated soda
  • citrus
  • wheat
  • pork
  • tomatoes
  • potatoes
  • dairy
  • sugar
  • eggs
  • shellfish
  • peanuts
  • anything that contains hydrogenated oil

After four weeks, reintroduce the eliminated items, one per week and if no allergic symptoms occur, add the item back into the diet. Read more   More to come….

Blessings, Dede

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