Lessoning stress in one’s life is key to maintaining a healthy balance including how stress affects one’s digestion. Adding probiotics daily as a supplement is an easy and helpful way to aid the homeostasis in the microbiome. Having Crohn’s disease is a tough diagnosis, but achieving gut-level homeostasis is key to keeping a balance of good and bad bacteria.
Many people don’t realize that taking antibiotics can sweep out the gut flora, causing the balance to shift. I watch my diet carefully: no wheat, no sugar, lots of vegetables and sustainably harvested fish and organic chicken, daily antioxidant tea, mediation, yoga, lots of sleep and daily 3-5 mile hikes.
About twenty years ago, I got severe food poisoning from a fast-food chicken sandwich and I didn’t realize the bacteria invaded my gut and created an inhospitable environment where good bacteria and “bad” bacteria normally thrive in a kind of symbiotic balance. I had an overgrowth of bad bacteria and it wasn’t until I developed full-blown Crohn’s disease and had a bowel resection that I started to really take care of my gut microbiome and my quality of life improved immediately.
Based on my experience with having an autoimmune disease, I have created the following list. Think of it as a kind of spring cleaning. Remember everyone is different, so some of my tips may not work as well for you but it’s worth a try (and as most of my readers know, I recommend keeping a daily log of your diet and activities and stress level). Here are “Dede’s daily tips” as follows:
- You should eliminate all sugar from your diet.
- They say no alcohol or coffee, but maybe a tiny bit of black tea, or half a cup of coffee with boiling water a day. I also have one or two drinks over the weekend. Vodka tonic or gin and tonic; sometimes I have a light beer.
- No dairy. That said, I do allow myself 1 tablespoon of half-and-half in my tea or coffee per day. That’s my only luxury!
- No grains at all! Focus on big salads (with avocado and organic vegetables and a hard boiled egg in the mix—make your own dressing with pure olive oil and a little bit of lemon juice or balsamic vinegar)), and chicken, fish and eggs (all organic and the fish should be cold water/wild caught), and chopped nuts and dried fruit.
- Start drinking green, organic Moroccan mint tea in the afternoon for a little pick me up, and snack on carrots and hummus. At night, always drink a cup of chamomile tea with a little honey. This will help you de-stress your body. And mind.
- Try to get out and exercise, usually walking (or slow jog), 3 miles per day. When you come back, do gentle Rodney Yee yoga for about 20 minutes, and then do guided meditation for about 1 to 5 minutes. When you do guided meditation try to focus on healing and forgiveness and bring the breath from the top of the head down the spina. Focus on the breath. I always do a cleansing mantra that goes like this: white light healing inflammation gone.
- Try to get at least seven hours of sleep a night
- Take a hot bath or shower and use lavender in the bath before you go to bed. Try to read a book before you go to bed to take your mind off social media, etc.
- Get acupuncture once a month. Get a massage once a month (I know this is expensive, but it’s worth it!)
- Take a really good quality probiotic every night before bed. I usually take the Jarrow brand with the highest count of lactobacillus and acidophilus.
- Take omega-3, a multivitamin, vitamin C, hi high-potency turmeric/curcumin, and some liquid vitamin D drops every day.
- When you feel a tiny bit of a scratchy throat or rundown, add an immune booster homeopathic liquid (usually it’s about 30 drops in water) once a day before going to bed. Note: when I’m really feeling sick, with actual symptoms like cough or fever, I take goldenseal and echinacea in liquid drops.
- Carry a small spray canister of Bach Flower Remedy in your knapsack or purse. When you really feel rundown or stressed, just spray twice in your mouth. It really helps!
- As far as this list goes just try it for three months and see if it helps, then continue for three years (!). But really do it carefully! You can make things using almond flour and coconut flour (homemade tortillas, yum—black beans are okay in moderation and I mix them with roasted veggies/roasted potatoes).
- I forgot to mention that I love coconut milk—unsweetened—that you can use for breakfast. I usually mix bananas and nuts with dried fruit and cut up melon or strawberries in a bowl and add coconut milk to make a kind of morning cereal.
- Drink tons of water every day as well! I think that’s it… but I hope it helps.
Try to plan some kind of trip, and remember, it doesn’t have to be expensive or involve air travel which can add to the stress. Just a trip to the beach or a hike with a friend or loved one is a great way to relax. Going out in the woods every day is amazing.
Happy Spring! I would love it if readers shared their own tips in the comment area.
According to the Mayo Clinic, after you eat, it takes about six to eight hours for food to pass through your stomach and small intestine. It takes a total average time of 43 hours from eating to stool elimination—I like that they call,this “transit time.” Food then enters your large intestine (colon) for further digestion, absorption of water and, finally, elimination of undigested food. After I researched this topic, I thought about how proper digestion is integral to maintaining good health — vital, really. I am interested in hearing from readers about exploring their own relationship to food. Start when you were young, or when you were first diagnosed. I recently discovered the amazing work of Crohn’s patient, Daniel Leighton. He openly explores his disease through his art, and I was blown away—his piece entitled “Tied Up at the Hospital” is superb (heartbreaking to me), and I encourage you to follow his work. So, let’s use ART to share our experiences! I use creative nonfiction, and writing has always been my release—in our book, Jessica and I encourage patients to “keep a food journal,” but now I also want to encourage patients to explore their disease, their relationship to food, their fears and loneliness, humor and love, through making art (photography, poetry, writing prose, painting, video, drawing, etc.). I can’t wait to publish some of these works! (Email me at email@example.com.). Okay, I will start off with a piece of my own creative nonfiction:
How my longing for food — my lifelong love affair with what I could, or could not, eat — began.
I was longing for food, literally desperate for the half-eaten slices of pizza left on the plates at a restaurant off Harvard Square. I was a 26-year-old bulimic, and food was my secret obsession. Who doesn’t love the hot-out-of-the-oven, doughy-crust pizza with fresh-grated mozzarella garnished with chopped basil leaves?
The revelers had straggled out of the room after a private engagement party. I told my boyfriend I had forgotten something, and walked back in through an arched doorway. The jukebox finally playing the Bonnie Raitt song, “Somethin’ to Talk About,” I had selected earlier. I stood there and gazed around the room: it looked a hurricane had breezed through around 60 knots with chairs overturned and crumpled napkins scattered about….
But it was what was on the paper plates that caught my attention: I made my way along the tables and grabbed slices of pizza and—gazing back at the arched doorway to see if anyone was coming — I scarfed them down and pushed the food into my mouth with both my hands like a refuge from war-torn Biafra.
You see, I didn’t know it then, or perhaps that was when I knew something was the matter with me. I was skinny and sick; mentally obsessed with a longing for food that occupied my thoughts much of the time.
A morning run along the Charles River was the usual start to my day—I loved this and felt so light as I jogged the worn paths past the brick buildings of academia. After my run, my reward was half a honeydew melon and a cup of coffee. Then I’d ride my bike to work at the publishing house on Beacon Hill. At lunch, I ate dry salad, and when I came home in the early evening, I ate popcorn with brewer’s yeast with Diet Coke.
Why, you may ask, did this young woman who was outwardly happy—a job in publishing, a boyfriend who had returned after a year hiatus, a loving family in nearby Providence, Rhode Island—resort to eating leftover food from people’s plates in public restaurants?
Having a mother who apparently subsisted on candy bars was one thing, a father who talked obsessively about food and his inability to loose weight, was another. “Am I fat?” plagued me throughout my adolescence.
My family prided themselves on being thin and fit, with tennis, riding, and golf practiced at various clubs—and at school, we played field hockey. Going to an all-girls high school had the added benefit of questions like “You Haven’t Gotten Your Period Yet?”
After high school, I took a year off from attending the non-existent college that my parents pretended I’d been accepted to. I headed to Vienna, where Weiner Schnitzel, Würst, pastries, and beer were to form the main ingredients of my diet, and after a few short months, I weighed 170 pounds.
When I returned from Europe after a year, my father announced that I had gained the “Freshman 15-times-two,” without attending college!
I remember the day I landed at Boston’s Logan Airport. My mother and one of my little sisters, Alex, stood there at the gate. My mother had her kerchief on, covering her wig at the top of her head that gave her that ’70s bouffant look; she was wearing her big Jackie O shades and had one of those purses that look like a small picnic basket with flowers painted around the edges clutched under her arm.
“Guüten Tag, Muttie und meine kleine Schwester!” I called gaily.
I walked toward my mother and sister and watched their mouths drop open. I was around 180 pounds at that point, my hair was cut in an ill-fitting pageboy, and my skin was dark brown from a summer spent sleeping on the edges of fiords after hiking around Scandinavia. They had no idea who I was!
The reality of my situation—home after 12 months after living on my own in Vienna and traveling around Europe—was horrifying to me! I was so heavy the buttons on my Indian print button-down shirt were almost popping off.
The whole way home in the car, I only spoke German, trying to explain to my mother that I had “forgotten how to speak English!”
I also liked this “no food/empty stomach” feeling I had in the car that afternoon when I returned, a stranger to my family, back from my year off, and I wanted it to last.
I retreated to my bedroom and unpacked my Kelty backpack, holding back the tears that I knew would never come.
This piece is excerpted from Spin Cycle by Dede Cummings, a creative nonfiction work-in-progress to be published (hopefully!) in 2017.
When you or your loved one was first diagnosed with IBD, you probably felt like your life and taking a sudden spiral downward. You may have found yourself in the state of utter confusion, a deep-seated feeling of loneliness and depression taking root in the very core of your being. This may sound dramatic, but too many sufferers of both Crohn’s disease and ulcerative colitis feel this way in response to their diagnosis. The good news is that the better informed you become about your newly diagnosed condition, the better off you will be in the long run.
One problem that many people with IBD know all too well, is that these diseases, especially Crohn’s disease, can reoccur. Although therapies can reduce signs and symptoms, often the hope for full remission is stymied by widely varying factors.
Treatment options often include hospitalizations, surgery, and medications, but they rarely include a holistic approach that incorporates acupuncture, a new diet (potentially wheat-and-dairy-free), stress reduction, psychotherapy, yoga and meditation, naturopathic medicine, and a special protocol in detoxification.
When the proper groundwork is set for healing, the treatments, lifestyle practices, and even pharmaceutical medications, are much more effective at reducing symptoms and promoting healing. Our bodies were meant to function as a whole, and treatment plans should always be directed at the whole body to achieve the desired effect of wellness.
For me, as a Crohn’s disease patient, I benefit so much from going to see my regular doctor (an M.D.), and my naturopath (and ND), as well as my IBD specialist at the clinic at Dartmouth. I hope that someday soon, all three will be able to work together seamlessly. Until that time, I have to be the instigator, and make sure that my medical records are sent to all three places, and I have to be very proactive to stay on top of my appointments, asking my questions, doing my own research, and creating my own support system. All of the specialists and doctors are very busy people (as most of us are), and it is imperative for those of us with IBD, or our caregivers, to be very motivated.
Sometimes it can feel overwhelming. But make a list of things to do:
- Walk every day—start small, and gradually add miles. . . . A walk on the beach, like my friend in the photo, really releases stress. Do a short yoga stretch before or after!
- Buy a new water bottle—I love my 22-ounce LifeFactory glass water bottle with the rubber exterior!), and take one step at a time.
- Find a recommended naturopath in your area.
- Make sure you have at least yearly appointments with all the doctors on your “team.”
- Embark on the new dietary guidelines in this book.
- Take a high-potency probiotic (I take 1 capsule daily, called VSL#3, that really seems to be helping by bowel movements), or one that is recommended by your team.
- Consider asking your MD or ND to do a complete blood work-up, and also to test your adrenal function.
- (Last, but not least,) Work with a naturopath, preferably, to balance the immune system to achieve homeostasis that is promoting wellness in your mind and body.
Happy Spring Detox and Motivation….. And Happy Almost Summer!
A recent study from Georgia State University published in Nature, points to emulsifiers leading to changes in the intestinal track that eventually lead to inflammation. Food addivitives are being suspected, and research will move forward from mice to human studies.
The intestinal tract is inhabited by a large and diverse community of microbes collectively referred to as the gut microbiota. While the gut microbiota provides important benefits to its host, especially in metabolism and immune development, disturbance of the microbiota–host relationship is associated with numerous chronic inflammatory diseases, including inflammatory bowel disease and the group of obesity-associated diseases collectively referred to as metabolic syndrome. A primary means by which the intestine is protected from its microbiota is via multi-layered mucus structures that cover the intestinal surface, thereby allowing the vast majority of gut bacteria to be kept at a safe distance from epithelial cells that line the intestine1. Thus, agents that disrupt mucus–bacterial interactions might have the potential to promote diseases associated with gut inflammation. Consequently, it has been hypothesized that emulsifiers, detergent-like molecules that are a ubiquitous component of processed foods and that can increase bacterial translocation across epithelia in vitro2, might be promoting the increase in inflammatory bowel disease observed since the mid-twentieth century3.
This study is good news for those of use who have a diagnosis of Crohn’s or colitis, collectively know as IBD.
I was diagnosed with Crohn’s disease in 2001, officially, and managed the disease with antibiotics, Prednisone, naturopathic doctor visits and supplements. No one else in my family suffers from Crohn’s. However, in 2006, I developed fistulas and a granuloma, and I was extremely sick when admitted to the hospital with a blockage in my small intestine (there terminal ileum is the most common place Crohn’s develops). I didn’t eat solid food for one month leading up to, and after, my surgery— I weighed only 119 lbs on my 5 foot 8 frame (now I am up to 145 lbs.!)
After returning home, I began to search for a book that would aid in my recovery and help me establish a “new lease on life.” Surprisingly, I couldn’t find this book anywhere—so I began to write a proposal to write the book that I was looking for: a book that would be predominantly a wellness guide about living with an incurable disease. Here is what my teacher/editor had to say about this book:
“Dede is an amazing woman! In this book you will find not only helpful advice but real inspiration.”
—Julie Silver, M.D., assistant professor, Harvard Medical School, author of What Helped Get MeThrough: Cancer Survivors Share Wisdom and Hope
At that time, I had had a moderate case of Crohn’s for eight years and had been in and out of the ER four times for treatment of flare-ups (usually fluids and bowel rest did the trick). I was ready to learn how to manage my condition and take a proactive role in my own health so that I could avoid more hospital stays and enjoy life and doing the things I loved again, like hiking, cross-country skiing, running, and especially traveling.
Now that the book is out, and my new cookbook just came out, I can say with confidence that Jessica Black, ND (my co-author) and I were certainly on the right track in terms of our research into gut microbiota! Jessica was already a forerunner with her wonderful book, The Anti-Inflammation Diet and Recipe Book. I really have Jessie to thank, for not only being my coauthor, my far-flung naturopath (I am on the east coast and she is in Portland, Oregon), but my inspiration for taking charge of my own health.
In our book, Living With Crohn’s & Colitis, Dr. Black and I frequently stress the need for an additive/preservative-free diet, a diet that focuses on natural, organic foods. (Note: Even when additives are derived from plant sources they can still be harmful.)
My perspective—that is, the patient’s perspective—makes this book unique and personal. Through my story, you will learn how I became an advocate for myself upon receiving a Crohn’s diagnosis. As the years went by and I developed a better understanding of my body and its healing, I became a resource for alternative therapies, and I want to further the mission of helping people balance their clinic treatments with Eastern medicine and healthy eating habits.
I remain quite healthy now, though not in full remission. I am dealing with active Crohn’s disease and ulcerative colitis by balancing a Western medical plan with a naturopathic treatment plan, an additive-free diet, along with acupuncture, massage, yoga and exercise (don’t forget getting enough sleep!).
I know what it is like to suffer from illness and want to help our readers and their caregivers regain wellness. We love to hear from readers, so please comment and let us know who you are doing and what works for you so we can share!
Dede’s friend, nutritionist Chris Ellis, is so knowledgeable and I’ve been bugging her to do a book with, too…. Here is a good overview of the Paleo diet.
Since I reported in my last article that I was a vegetarian some people may wonder why I would write about the other side of the diet spectrum, the currently popular Paleolithic Diet, which contains a significant amount of animal protein. I would respond by saying that every individual has specific dietary needs and not everyone biochemically or mentally feels at their optimal health being a vegetarian. I think everyone just needs to be aware of the choices and to do what feels best for their body physically, as well as what feels right for them philosophically. I would encourage individuals to be mindful of the impact their choices have on the environment and the earth too. In this article I am providing a little more insight into the Paleolithic Diet and hopefully that might help in exploring what type of eating plan works best for you or your family.
The Paleolithic Diet is a modern version of the diet that was followed by our ancestors many thousands of years ago. The diet was different wherever humans lived, depending on what animals also lived in the area for hunting and the availability of plants and seafood. The Paleolithic Diet was practiced prior to modern day agriculture and the domestication of animals. The diet consists of grass-fed animals such as beef and chicken, seafood, eggs, wild plants including vegetables (lots of root vegetables except potatoes), fruit, nuts (no peanuts), and seeds. The diet contained an ample supply of omega-3 fats mainly from the seafood, nuts, seeds, and the grass-fed animals since we had no surplus of corn and soybeans to feed our wild animals. Cereal grains are not a part of the diet and these include wheat, corn, millet, rice, barley, oats, sorghum, and rye. These grains were not available back then and they all need to be cooked in order to be consumed. The proponents of this diet believe that what humans ate back then is better suited genetically and biologically to our nutritional needs. Our human makeup is not coping well with the many changes in our present diet according to those who advocate for this diet and our bodies are not adapting well to the modern way of eating, specifically all the high calorie, highly processed foods. The root of many chronic health problems we face now, such as obesity, diabetes, heart disease, and cognitive disorders like depression and Alzheimer’s, are related to the diet most people follow in this country.
The changes in the modern diet include an increase of refined carbohydrates and cereal grains, a decrease in animal protein, a decrease in omega-3 fats, and an overabundance of sugary and salty foods such as candy, pretzels, chips, soda, etc. The modern American diet is comprised of approximately 50-60 percent carbohydrates, 15 percent protein, and 25 to 30 percent fat calories. The Paleolithic Diet, however, is comprised of approximately 25 to 30 percent protein, 40 percent carbohydrates, and 30 to 35 percent fat calories. The introduction of processed foods in the late 1800s definitely had an impact on the quality of our diet, and as our food supply became more industrialized the variety of crops and foods grown declined. But that is making a turnaround now, especially in Vermont, fortunately!
Humans are meant to eat a diversity of foods for optimal health but our diet today offers not only a wide variety of foods and ingredients but excess calories (sugar, unhealthy fats, corn products, etc.) far different from the hunters and gatherers regimen. We do not have to go far to get food, so very few calories are burned to “hunt or gather” our food. It is available on every corner depending on where you live, so long as you have the economic means to gather it.
So should we all eat the Paleolithic Diet? There are benefits to “eating Paleo” but our modern Paleolithic diet cannot duplicate the one followed by our ancestors. We are aware that there are benefits to a minimally processed diet and no matter what diet we choose we should strive to follow that. There are many good eating plans available (vegetarian, Mediterranean, Asian, etc.) and some may or may not contain meat and/or animal protein. It is best to consume animal protein from grass-fed animals (ideally with as little pesticides from their food as possible) with little or no use of drugs or hormones, safe wild seafood (not all fish is safe, as we know), and eggs, along with plentiful amounts of vegetables, seeds, nuts, and fruit—the basic Paleolithic Diet modified based on the dietary sources we have now that meet the guidelines. Choose an eating plan that you can follow that is optimum for your health and don’t forget to include an exercise component since that was an essential part of the Paleolithic lifestyle. We will all enjoy a longer healthier life if we follow some or all of the Paleolithic dietary guidelines!
Questions? We’d love to hear from our readers and their own experiences with the Paleo Diet and IBD.
In the photo, from Living With Crohn’s & Colitis Book co-author, Dede Cummings, you can see the yummy roasted veggies that are perfect for the Paleo diet! The recipe is in my new cookbook, too!
Switching to a diet high in Omega-3s has been a major factor in my being in remission!
When I was first diagnosed with Crohn’s and colitis, I did not exactly jump into the fray of changing my diet and lifestyle… It took a few years! When you set out to try to change habits that are ingrained and also are associated with comfort (mother’s mac ‘n cheese anyone?), it takes time.
Now that I am on the other side of my twenty-year Crohn’s/colitis saga, I am in a place where I want to help others find their own way.
Once thing I have learned through my dietary study, is the fact that we need Omega-3 fatty acids in our diet daily—and not just if you are a Crohnie or uc-er. Every day.
I eat wild-caught salmon at least once a week, take flax seed ground up to aid in digestion and add fiber to my diet. I also take an Omega-3 supplement daily that really helps my arthritic joints (due to Crohn’s). I am healthy, fit and the doctors are surprised and how well I am, relying on diet, supplements and a holistic lifestyle.
Someone like me would normally be on autoimmune suppression drugs, but I do not want to do that to my body, and my choice was a wise one as I am incredibly healthy!
Omega-3 fatty acids are found also in walnuts, which I also eat every day. Other sources are the ALA (alpha-linolenic acid) Omega-3 fatty acids found in certain vegetable oils like soybeans, canola and flaxseed, as well as in green vegetables (kale, and more kale!, spinach, Brussels sprouts, and leafy greens). The other type of Omega-3 fatty acid is called EPA (eicosapentaenoic acid), and is present in salmon especially, as well as other types of fatty fish: Bluefish, mackerel, herring, tuna, anchovies and sardines are also excellent sources of omega-3s.
According to Dr. Frank Sacks, Professor of Cardiovascular Disease Prevention, Department of Nutrition, Harvard School of Public Health, you should have at least one serving of Omega-3 fatty acids in your diet daily.
In my upcoming cookbook, Living With Crohn’s & Colitis Cookbook: A Practical Guide to Creating Your Personal Diet Plan to Wellness (with an Introduction by Jessica Black, ND, and a Foreword by Sarah Choueiry, Crohn’s patient and founder of The Crohn’s Journey Foundation) due out in September (!), I have a few salmon recipes, and I’d like to share one now (quick and easy and great for summer dining—remember, if one of the foods, like apples, is a trigger food and hard to digest, substitute it or delete it from the recipe and adjust the mayo and seasonings accordingly)…. Enjoy!
Easy Salmon Salad
2 cans wild boneless, skinless salmon
½ cup mayonnaise, organic
½ cup minced carrots
½ cup minced apples
¼ cup sweet relish, organic and sweetened naturally
Mix all ingredients in a large bowl. Serve chilled with crackers, on a salad, or alone.
….and I also want add a checklist for how to shop for the best salmon and how to cook and store the fish, as follows:
Wild-caught salmon (in photo) follows the seasonal run of the Pacific Northwest, and we strive to be first to market. According to the folks at Central Market, you should only buy from markets that buy fish from strictly regulated fisheries committed to sustainable practices and the guidelines set forth by the Marine Stewardship Council (MSC). The fish has been out of the water less than 48 hours prior to its arrival, flown in fresh several times a week and each piece is inspected.
Here are some tips from them to best enjoy your wild-caught salmon:
- Eat or freeze within 24 hours. Keep it in the refrigerator covered tightly in plastic wrap until you’re ready to cook it.
- Don’t rinse with water or the color will leach.
- If grilling, preheat grill to medium-high and grease it well with olive or grapeseed oil. Place the salmon on the grill, meat side down, and cook for 3 to 4 minutes, depending on thickness of the fillet. Flip over and cook 3 to 4 minutes more, skin side down. Also try it with a cedar plank. Sear with meat side down, then place skin side down on cedar plank and close the grill to infuse that cedar-smoked flavor.
- If using a cast-iron skillet, heat it until almost smoking and sear 2 to 3 minutes on each side. Pull it off the heat and let it continue to cook in the skillet until desired doneness.
- Salmon is done when it starts to flake, and it tastes best with a medium center.
Now that you know how to store and prep your salmon—enjoy! You can also pre-order my cookbook right here at your local, independent bookstore, and Sarah Choueiry and I are really excited to introduce you to a ton of great and easy recipes!
Happy Almost Summer!
When I was having flare-ups more frequently, before my surgery and before I started following Jessica’s naturopathic plan of care, I didn’t really connect the dots of my IBD flaring up during travel.
I remember one trip in particular, and as I reflect some ten years later, I see how my Crohn’s would flare, and my vacation would end up being a disaster. Don’t get me wrong, I “always” put up a good front—for my kids’ sake, mostly. I wanted them to have a good time, and I “had to be strong,” etc.
…memory lane, trip from hell…
Ten years ago, in early summer, we left our home in Vermont and drove to Philly. The next day we drove straight through to North Carolina. I did a lot of the driving, and chewed endless quantities of sugarless gum — you know, the kind you get at the gas station that has aspartane in it, and even though you never chew gum at home, you are desperate to stay alert to alleviate the driving. The kids were all happily reading in the back seat, chatting with my husband, and feeling excited the closer we got….
As we got closer to our destination—Ashville—I began to feel bloated and crampy. I wasn’t drinking water, and was eating fast food… Fast forward: Day 3 of our vacation, and I’m still in our beautiful little cabin, lying in bed with severe cramps, low-grade fever…. Friends would stop in and say hi, but I was mostly alone, hearing the voices of the families going off on canoeing day trips, or such.
…hindsight is easy, reality isn’t…
It’s easy to look back now, and say, “I should have packed my own food for the trip, avoided fast food and chemical-laden gum, gotten tons of sleep, taken the train (!), or flown….”
Let me tell you about my trip to the writers’ retreat in Florida:
I splurged on van carpool ride to the airport, flew down after my usual breakfast I call Paelo Stew (chopped nuts and fruit with fresh almond milk), drank tons of water (using my stainless steel water jug to not use so much plastic or paper), drank black tea with just a smidgen of organic half and half cream—my ONE allowable treat/no coffee, packed organic fresh-ground peanut butter for the trip (under 3 ounces for carry on), some wheat-gluten-free crackers, an apple and a ziplock bag of nut-raisin mix.
When I got there, I got settled and had a late snack: boiled egg, iced tea, carrots and hummus; I went for a walk, did some yoga, met with the writers, etc, and got to bed early. Note: that night, Suzanne, our writing guru 😉 made a beautiful black bean soup. Nope. As much as I craved it with grated cheese, fresh cilantro, and topped with sour cream, I did not eat it. I had packed some really good turkey from my food coop at home, and I just ate that.
When some of the writers asked me why I wasn’t eating the main course, I sipped my unsweetened organic cranberry juice mixed with soda water, and told them I had a serious case of a Crohn’s disease, and they were all so respectful and talked openly about it with me. I talked about being on the Paleo since last June, and that got a lot of response… Many people supported that diet. No sugar is not that hard anymore!
For dessert, I had one square of dark unsweetened chocolate one day. I ate oranges from the farmer’s market, and had grilled mahi-mahi one night. When we went out for dinner in St. Augustine, I had three delicious chicken tacos with no cheese and no rice or beans, but they gave me guacamole instead!
I walked 2-3 miles a day (natch, being on the beach was nice), did yoga, had some downtime by myself one afternoon reading on the beach, and all in all, it was a huge success—I’ll even post a video link that was made by photographer, Jeff Woodward, of our group to show you how beautiful it was there! I didn’t get to have one of the shiatsu massages because I was one of the staff, but I took her card, and plan to go when I save some money.
Don’t be discouraged by travel this summer, be in control!
In some human diseases, the wrong mix of bacteria seems to be the trouble.
I recently discovered a new blog that is specifically for Chronic Fatigue Syndrome and Fibromyalgia. It is called Health Rising and the link is below.
There are articles that explore gut health and microbiota by Ken Lassesen, that really explain the importance on overall homeostasis for everyone, whether you have Crohn’s, colitis, IBS, IBD, Celiac, etc.
I am on a strict diet of no dairy, no grains, no sugar. Supplements include probiotics and turmeric. I am really healthy and haven’t had symptoms for almost eight years! I did have a partial bowel resection, in 2006, that changed my life and set me on a path toward wellness— that is when I wrote my book because I was disillusioned by the recommendations of my GI doctors who said I should take heavy-duty, autoimmune-suppressing drugs.
Read more: Bacterial Resistance, Infection and Chronic Fatigue Syndrome: Fighting Infections Pt. I http://www.cortjohnson.org/blog/2014/03/26/bacterial-resistance-infection-chronic-fatigue-syndrome-fighting-infections-pt-1/
In some human diseases, the wrong mix of bacteria seems to be the trouble, Part 2.
A recent NPR story on gut bacteria and Crohn’s disease really impressed me, so I want to share it in its entirety here on my blog!
Mix Of Gut Microbes May Play Role In Crohn’s Disease
The particular assortment of microbes in the digestive system may be an important factor in the inflammatory bowel condition known as Crohn’s disease.
Research involving more than 1,500 patients found that people with Crohn’s disease had less diverse populations of gut microbes.
“[This] basically for the first time identifies what might be the bacterial changes in patients with Crohn’s disease,” says Ramnik Xavier, of Masssachusetts General Hospital in Boston, who led the work.
More than a million Americans suffer from Crohn’s, which seems to start when an overreactive immune system causes abdominal pain, diarrhea, bleeding, weight loss and other symptoms. Many patients have to take powerful steroids (which can have serious side-effects), and some have parts of the digestive tract surgically removed.
Mounting evidence has suggested that microbes living in the gut might contribute to the problem. So Xavier and his colleagues compared the species of bacteria in more than 447 Crohn’s patients to the mix of microbes in more than 221 healthy people.
In their paper published in the journal Cell, Host and Microbe, the researchers detailed the clear difference they discovered: The patients with Crohn’s seemed to have too many of the sorts of bacteria that rile immune systems.
In addition to having less diversity in their gut microbes, Xavier says, the Crohn’s patients had fewer bacteria that have been associated with reduced inflammation and more bacteria associated with increased inflammation. (The findings were confirmed in 800 Crohn’s patients from other studies.)
Interestingly, children whose doctors had tried to treat their Crohn’s symptoms with antibiotics before they were properly diagnosed had a mix of microbes that was the most out of whack.
“We may have to revisit the use of antibiotics in [these] patients with early-onset Crohn’s disease,” Xavier says.
Instead, doctors might eventually do better to identify and prescribe treatments that mimic the helpful bacteria, he says, along with foods or other pharmaceutical agents that reduce or counteract the harmful bacteria.
“There’s the possibility that we might be able to identify [some] sort of super-probiotics that might be able to correct the gut back to the healthy state,” Xavier says.
UCLA pathologist Jonathan Braun, who studies microbial ecology, says the paper offers important first insights into illnesses beyond Crohn’s. “Other diseases are thought to be driven at least in part by bacteria,” he says, such as some inflammatory and autoimmune disorders. Bacteria may also be involved in obesity.
Humans should work harder to understand bacteria, Braun says, “and live with them when they’re helping us, or get them to serve us better when they are causing harm.”
Good for the media to pick up in the importance of balance in the flora and fauna of the gut—remember, everyone is different and there is no know cure for Crohn’s (for UC, the large colon can be removed, putting the patient in remission, but that is not the case for Crohn’s unfortunately).
So, with Spring on the way, now is the time to set some goals for health: sign up for Team Challenge with the Crohn’s and Colitis Foundation of America, walk 3 miles a day (get your heart rate up by walking up hills), do yoga/meditate, get lots of sleep, make an appointment with a naturopath, too. Spring brings with it hope for new life (and here in Vermont, lots of mud!).
I would definitely recommend getting another opinion. I got two!
One of our readers wrote to say her doctor told her she “shouldn’t feel any pain from UC.”
Pain is a bi-product of both Crohn’s disease and ulcerative colitis. My disease caused pain when I flared—it even felt like labor pains! I have Crohn’s. My disease is characterized by scarring—called fibro stenotic disease. UC does not usually go through the outer wall of the large intestine the way Crohn’s does with the small… So some people don’t have pain, but have diarrhea instead.
Remember, everyone is an individual, and we have different symptoms and react differently to different foods, or stress, for example. I (Dede) always say this: listen to your own body, ease off on trigger foods, like dairy or wheat, be proactive in your health care and do research and ask questions. Bring a list, and a partner or a friend, to your doctor’s appointments.
One time, I brought my husband, and he had done all this research (he’s an English professor ;)… at one point in the meeting, the gastroenterologist leaned over his desk and said to my husband, “Hey, what do you have on that drug?”
One thing to be aware of: getting off Prednisone. Did your doctor tell you to taper off slowly? My GI did. I love my team at Dartmouth Hitchcock in NH, it’s important to find a clinic and doctor you can trust who really listens to you!
Diet—yes, can cause pain and symptom flares. Don’t let a doctor fool you! Listen to your own body!
There is an excellent website-forum called www.ihaveuc.com and you should “tell your story,” and pose any questions you have there, also.