Recently, on Goodreads, a reader wrote a very thorough review . . . It makes me think I should just do a book of all of “Dede’s Grey Boxes” from the Crohn’s book! What do you all think? A “how-to” from a patient who has kicked Crohn’s disease? A “saying no” to major medical institutions (like the Mayo Clinic) who advised me to start medication (Remicade/Humira, etc.) immediately and I didn’t and I beat the disease by following a naturopathic/holistic health plan that was outlined in our book . . . (just to be clear: Allopathic medicine saved my life by a combination of prednisone and bowel surgery of my small and large intestine (about 2 feet) to keep me alive…)
Check out the review & Happy Spring! Maybe I will work on this new book if it will help people!
Living with Crohn’s & Colitis: A Comprehensive Naturopathic Guide for Complete Digestive Wellness
Recommended for: People with Crohn’s, Colitis, IBD and their loved ones
Having just had a bad flare up of my Crohn’s, and a long and scary stay at the hospital, I’m now on a mission to read up more on current healing and overall wellness for people in my situation. This book was the only one amongst a sea of books that I had any interest in reading as a jumping off point. The combination of medical and personal account in this book is incredibly helpful. Hearing accounts of those who have “been there, done that, got better!” really is a spirit lifter for someone coming out of a bad flare and wanting to get on the right path.
The clinical information in this book is spot on and seems highly up to date. The biggest part of which is the proliferation of the idea that diet does matter to this disease. I was utterly dumbfounded during my hospital stay when I was given a menu of items I was allowed to eat (after being off food nearly a week) and it included so much junk. Though I didn’t thoroughly question my multiple doctors on their stance of diet in relation to Crohn’s, I got the impression most of them are operating under the “it doesn’t really matter what you eat” mentality. This blind spot in medicine, and not just related to Crohn’s, is a huge failing of our current system, and getting doctors to work with you on natural healing can be a challenge. Thankfully, books like this one are out there to help people start to see the interconnectedness of things like food, stress, supplements, along with pharmaceutical drugs and “modern” medicine. I have to give this book 5 stars for being detailed but understandable, informative, up to date accurate, and personally relate-able. The tips and tricks through the book are easy to understand and begin to incorporate in a healing plan for yourself. I recommend keeping paper and pen nearby to write down the names of various healing methods to try (like acupuncture and massage), as a reminder to look up that sort of thing in your area, and write down the names of supplements, foods and meals to try, etc.
My only complaint about this book is that Dede’s story and a lot of the helpful information is incredibly scattered throughout the book. We get chunks of things here and there between the related medical information. It was fine when reading through the first time, but I think the book would benefit from a few sections at the end that sort of combine the snippets scattered throughout into a more cohesive “summary” type section at the end for easier access when you want to use this as a reference instead. This is truly minor though, and since I can easily search the book on my Kindle it isn’t a huge deal to go back to re-read.
This book is a most excellent jumping off point for anyone wanting to get more information about Crohn’s and Colitis and a path to begin healing the whole body, not just covering up symptoms.
When you or your loved one was first diagnosed with IBD, you probably felt like your life and taking a sudden spiral downward. You may have found yourself in the state of utter confusion, a deep-seated feeling of loneliness and depression taking root in the very core of your being. This may sound dramatic, but too many sufferers of both Crohn’s disease and ulcerative colitis feel this way in response to their diagnosis. The good news is that the better informed you become about your newly diagnosed condition, the better off you will be in the long run.
One problem that many people with IBD know all too well, is that these diseases, especially Crohn’s disease, can reoccur. Although therapies can reduce signs and symptoms, often the hope for full remission is stymied by widely varying factors.
Treatment options often include hospitalizations, surgery, and medications, but they rarely include a holistic approach that incorporates acupuncture, a new diet (potentially wheat-and-dairy-free), stress reduction, psychotherapy, yoga and meditation, naturopathic medicine, and a special protocol in detoxification.
When the proper groundwork is set for healing, the treatments, lifestyle practices, and even pharmaceutical medications, are much more effective at reducing symptoms and promoting healing. Our bodies were meant to function as a whole, and treatment plans should always be directed at the whole body to achieve the desired effect of wellness.
For me, as a Crohn’s disease patient, I benefit so much from going to see my regular doctor (an M.D.), and my naturopath (and ND), as well as my IBD specialist at the clinic at Dartmouth. I hope that someday soon, all three will be able to work together seamlessly. Until that time, I have to be the instigator, and make sure that my medical records are sent to all three places, and I have to be very proactive to stay on top of my appointments, asking my questions, doing my own research, and creating my own support system. All of the specialists and doctors are very busy people (as most of us are), and it is imperative for those of us with IBD, or our caregivers, to be very motivated.
Sometimes it can feel overwhelming. But make a list of things to do:
- Walk every day—start small, and gradually add miles. . . . A walk on the beach, like my friend in the photo, really releases stress. Do a short yoga stretch before or after!
- Buy a new water bottle—I love my 22-ounce LifeFactory glass water bottle with the rubber exterior!), and take one step at a time.
- Find a recommended naturopath in your area.
- Make sure you have at least yearly appointments with all the doctors on your “team.”
- Embark on the new dietary guidelines in this book.
- Take a high-potency probiotic (I take 1 capsule daily, called VSL#3, that really seems to be helping by bowel movements), or one that is recommended by your team.
- Consider asking your MD or ND to do a complete blood work-up, and also to test your adrenal function.
- (Last, but not least,) Work with a naturopath, preferably, to balance the immune system to achieve homeostasis that is promoting wellness in your mind and body.
Happy Spring Detox and Motivation….. And Happy Almost Summer!
It is our hope that our readers have benefitted from the New Year, 3-month, Plan for Wellness. Here are seven painless and simple at-home acupuncture steps you can do to maintain good health and vitality. I recommend acupuncture and we had a wonderful guest blog post a few months ago that a lot of our readers thanked us for.
My naturopath also has me on a total “detox” regimen that includes castor oil packs, meditation (I use Rodney Yee’s “AM Yoga” DVD, or try Jon Kabat-Zinn’s wonderful collection of relaxation CDs), skin “sloughing” before shower (which entails roughing up your skin with a loofah sponge from your extremities toward your heart and encourages new cell growth), drinking plenty of water, regular exercise and daily yoga, counseling with a social worker or psychotherapist, weekly (free) REIKI and monthly massage visits, acupuncture sessions monthly, and physical therapy with integrative manual therapy-healing. A good attitude also helps. I regularly repeat to myself positive messages like:
“Don’t let this disease rule your life and get you down, but when you need to, ‘Ask for Help!’”
This simple YouTube mindfulness video by Jon Kabat-Zinn is wonderful, and Dr. Kabat-Zinn was one of the first to bring mindfulness into medicine!
The suggestions I receive from my naturopath are an attempt to enhance my body’s natural elimination processes through the digestive system, kidneys, skin, liver, and lungs. All are essential to help me optimize elimination with minimal aggravation while also undergoing specific treatment suggestions with my gastroenterologist. I have found this support team and naturopathic/acupuncture treatment to be extremely effective as an aid that can dramatically lessen the physical effects of inflammatory bowel disease.
These seven relaxation techniques are really easy to do at home. I do them before my shower daily! Foot massages are also very beneficial, which I do before bed with some moisturizer (I add a bit of organic apricot or sesame oil to the Pure Essentials moisturizer to thicken it up, and I also put cotton socks over my feet if calluses are bad), as well as candle-lit hot baths with lavender oil drops in the water.
- Brush your gums and tongue. Spend at least 5 minutes each time you brush (longer is even better). Set a timer because 5 minutes may seem like a very long time at first. The acupuncture points along the gums match with the entire body system, as does the tongue.
- Brush your scalp. Remember when moms insisted that we always brush our hair for 50 strokes? Turns out, there are hundreds of acupuncture points on the scalp itself. For a quick session, massage the governing vessel 20. This point is located at the very top of the head, the point of 100 meeting points, which enables you to access several channels at once. Spend time massaging your scalp with your fingernails and even while you shampoo.
- Push back your cuticles on your fingers and toes. Just the act of pushing back your cuticles stimulates acupuncture points that go directly to every muscle and tendon in the body, bringing on relaxation. Need to keep a small child quiet at an event? This works like a charm. Plus you can trace every finger front and back as well.
- Loofah your body. This is a hard sponge that softens with use. Loofah plants can be grown, and are much softer than those found at most department stores. (Note: when purchasing a loofah, be sure it says ‘loofah’ on the package.) Use the loofah wherever there is skin. There are thousands of acupuncture points all over the body. If you find a sore or itchy spot, spend extra time there. It is likely that it is an acupuncture point that needs stimulation. Electricity is accumulating there and stimulation via massaging or using a loofah disperses this accumulation. Before showering, use the loofah sponge to aggressively rub from the extremities toward the head, beginning with the arms, then working up from the feet. After you rub all the dead cells off your body, an invigorating shower further energizes you and allows for the stimulation of new cell growth.
- Moisten your nasal membranes. When you splash water on your face, keep water on your little fingers. Put your little fingers inside your nose and moisten all around. You do not need to sniff water up into your sinuses. Moistening your nasal membranes increases your chi (your body’s bio-electrical energy).
- Breathing exercises. Most of us are chest breathers, rather than abdominal breathers, so we tend to breathe shallow most of the day. On inspiration (breathing in), push your stomach out as far as you can. On expiration (breathing out), let your stomach fall back to neutral. This is very difficult to do at first without thinking about it. When you breathe with your abdomen it forces the diaphragm to drop and thus increases your lung capacity. This is why singers practice breathing so that they are able to sustain notes much longer. Breathing leads to more oxygen, more chi and more energy.
- Massage your face, hands, feet, and ears. You can do this yourself, but it is more relaxing and fun if done by someone else. These areas also treat the entire body individually.
(Grateful to Patricia S. Wesley, D.C. for her support)
Daily massage and stimulation will increase blood flow, help improve the effectiveness of your current therapies, improve mood, decrease inflammation, and promote healing.
Remember to think positive, and here is a wonderful quote and photo from the XIV Dalai Lama.
We like to hear from our readers, and thanks for helping spread the word about our book and recommendations!
—Dede, a Crohn’s disease/ulcerative colitis patient perspective—post surgical removal of ileum, large segment of Sigmoid colon, and fistula/granuloma mass—symptom-free for the past eight years, but still a Crohnie/uc-er by definition…
When you read Dede’s latest medical assessment (in the photo), you will see that she has no symptoms…and then read down, and see the symptoms/possible side effects from the medication!
That was May, 2013. In her checkup this past October, the doctors said they are amazed at her condition and attribute it to her and Jessica Black, ND’s low-inflammation diet and lifestyle! They told her that no medication is needed at this time, but only if symptoms occur.
The diet, the exercise, the yoga/meditation, and working with her naturopathic physician as well are all doing their job!!!
High-potency turmeric (curcumin phytosome), a prescribed probiotic powder (Dede buys all her supplements from her naturopath’s office… Expensive, but worth it for the best quality), ultra potent C, Omega 3 fish oil, Phyto-multi vitamins, magnesium with calcium, D3 liquid drops, and a daily adrenal assist (herbal) pill provides key nutrients and botanicals to support adrenal response to stress and support the ability to adapt to stressors and restore balance.
As we move into the wonderful month of February, with longer days and a holiday/school vacations, now is the time to think about training for a walk or a run (Team Challenge, or a CCFA.org walk—http://www.ccfa.org/get-involved/team-challenge.html). Set a goal… Also, add a visit to a naturopathic physician, and try acupuncture (with a trained practitioner who is recommended… If you are nervous about needles, ask for Moxa).
These anti-inflammatory diet and lifestyle changes are a big part of your wellness campaign. Take it one day at a time. Get out in nature (and snow) every day! And continue to heal, and restore balance in your life…
At the beginning of the new year, we checked in about following a 3-4 month plan for wellness.
The main thing to focus on is that it takes time to change habits, and sometimes having a tough diagnosis, like Crohn’s, IBD, colitis, celiac disease, diverticular disease, etc., can really scare us and throw us for a loop. Dede has found that taking control of your life and learning everything you can about your auto-immune diseasee, is a good first step. Ask questions of your doctors during interviews, and seek out local health practitioners that are recommended and certified—finding a naturopathic physician with a four-year degree and experience is an important step. Remember, naturopathic physicians can suggest a variety if options for your health plan, and augment what you are doing with the GI clinic.
A few years ago, when my GI was adamant that I start 6MP and Remicade, I was despondent and scared. My naturopath said to look at it another way, that if a patient has no choice (given their quality of life), there could be other supplements and a range of beneficial treatments to help alleviate symptoms from the drugs. Many of us have no choice! We are lonely and confused, to say the least.
After sobbing on the kitchen floor after my recurrence in November of 2012, I picked up the phone and called Portland, Oregon (where Jessica Black, ND, my co-author lives and practices naturopathic medicine), and asked for help. She recommended the curcumin-high-potency turmeric I now take daily (along with other supplements), and reassured me so I felt less overwhelmed. (I never did start the drug regimen, and remain in remission for the second year!)
Since we are embarking on the “new year plan of wellness,” let’s check in about some goals, and where we are now:
1. Continue previous points: a no-wheat, sugar-free diet that focuses on fruit and veggies and is organic; getting lots of restorative sleep (see photo of a how to make your bedroom a sanctuary!–this is from Hotel Vermont, but still!), daily yoga, meditation, and exercise, and a positive attitude….
2. Add an additional supplement or herbal medicine—talk to your doctor or naturopath about Vitamin D, or Omega 3.
3. Begin the Tapping for Energy technique (in our book) or daily acupressure. Dede likes to massage her feet before bed, using a nice mix of moisturizer and sesame or apricot oil. It is amazing how much stress is in our feet and the acupressure points relate to organs in the body. It is a great routine to press gently on some of these points — the bowel area is at the bottom of your feet (on both sides), and mostly I just press in gently and firmly and relax into the pressure—especially before going to bed. Look for a recommended acupuncturist, and make appointments for once a week for 4-weeks… See if it helps (if you don’t like certain needles, ask for Moxa!)
4. Experiment with adding more anti-inflammatory foods and spices into your diet. Last night, I made a fish curry with garnishes of bananas, raisins, chopped apples . . . yum!
Message me if you want the recipe. It was mild, not too spicy, and used Haddock filet.