My journal used for lists/questions for my doctor, and food notes.

My journal used for lists/questions for my doctor, and food notes.

I would definitely recommend getting another opinion. I got two!

One of our readers wrote to say her doctor told her she “shouldn’t feel any pain from UC.”

Seriously?

Pain is a bi-product of both Crohn’s disease and ulcerative colitis. My disease caused pain when I flared—it even felt like labor pains! I have Crohn’s. My disease is characterized by scarring—called fibro stenotic disease. UC does not usually go through the outer wall of the large intestine the way Crohn’s does with the small… So some people don’t have pain, but have diarrhea instead.

Remember, everyone is an individual, and we have different symptoms and react differently to different foods, or stress, for example. I (Dede) always say this: listen to your own body, ease off on trigger foods, like dairy or wheat, be proactive in your health care and do research and ask questions. Bring a list, and a partner or a friend, to your doctor’s appointments.

One time, I brought my husband, and he had done all this research (he’s an English professor ;)… at one point in the meeting, the gastroenterologist leaned over his desk and said to my husband, “Hey, what do you have on that drug?”

One thing to be aware of: getting off Prednisone. Did your doctor tell you to taper off slowly? My GI did. I love my team at Dartmouth Hitchcock in NH, it’s important to find a clinic and doctor you can trust who really listens to you!

Diet—yes, can cause pain and symptom flares. Don’t let a doctor fool you! Listen to your own body!

There is an excellent website-forum called www.ihaveuc.com and you should “tell your story,” and pose any questions you have there, also.

Advertisements